<p>Esta pequeña de <strong>7 años es reconocida en las redes sociales por su madre Dari&nbsp;Borun, una fit girl de Instagram</strong> que busca concientizar acerca de la enfermedad de su pequeña, mostrando su belleza a los usuarios.</p> 
<p><span></span></p> 
<div style="text-align:center"> 
 <div class="ck-instagram" id="instagram-12" style="display: inline-block;"> 
  <blockquote class="instagram-media" data-instgrm-captioned="" data-instgrm-version="7" style=" background:#FFF; border:0; border-radius:3px; box-shadow:0 0 1px 0 rgba(0,0,0,0.5),0 1px 10px 0 rgba(0,0,0,0.15); margin: 1px; max-width:658px; padding:0; width:99.375%; width:-webkit-calc(100% - 2px); width:calc(100% - 2px);"> 
   <div style="padding:8px;"> 
    <div style=" background:#F8F8F8; line-height:0; margin-top:40px; padding:59.53703703703703% 0; text-align:center; width:100%;"> 
     <div style=" background:url(data:image/png;base64,iVBORw0KGgoAAAANSUhEUgAAACwAAAAsCAMAAAApWqozAAAABGdBTUEAALGPC/xhBQAAAAFzUkdCAK7OHOkAAAAMUExURczMzPf399fX1+bm5mzY9AMAAADiSURBVDjLvZXbEsMgCES5/P8/t9FuRVCRmU73JWlzosgSIIZURCjo/ad+EQJJB4Hv8BFt+IDpQoCx1wjOSBFhh2XssxEIYn3ulI/6MNReE07UIWJEv8UEOWDS88LY97kqyTliJKKtuYBbruAyVh5wOHiXmpi5we58Ek028czwyuQdLKPG1Bkb4NnM+VeAnfHqn1k4+GPT6uGQcvu2h2OVuIf/gWUFyy8OWEpdyZSa3aVCqpVoVvzZZ2VTnn2wU8qzVjDDetO90GSy9mVLqtgYSy231MxrY6I2gGqjrTY0L8fxCxfCBbhWrsYYAAAAAElFTkSuQmCC); display:block; height:44px; margin:0 auto -44px; position:relative; top:-22px; width:44px;">
       &nbsp; 
     </div> 
    </div> 
    <p style=" margin:8px 0 0 0; padding:0 4px;"><a href="https://www.instagram.com/p/BYgBVkFn1np/" style=" color:#000; font-family:Arial,sans-serif; font-size:14px; font-style:normal; font-weight:normal; line-height:17px; text-decoration:none; word-wrap:break-word;" target="_blank">Summer just ended but it's never ends in Miami so I always have to be in shape����as usually I'm staying in shape with @SkinnyMintCom and their #SuperFatBurning gummies, one bottle for the morning and another for the afternoon �� Of course my #VirsaviyaWarrior don't take it , she need no fat burn ��but she just want to be on every single picture with me ������ because she loves me so much �� #SkinnyMint #FatBurning #ad You guys can use promo code LABOR20 applicable for 28 day and besties Teatox ���� @fit_thick_riri #fitthickriri #staystrong #stillstrong #stillbeautiful #ilovejesus #jesuslovesyou #prayerswork #ibelieve #healthy #healthylife #healthylifestyle #jesuslifestyle #jesuslife #godisgood #godisgreat #jesusheals #jesussaves #powertv #promotion #theellenshow #oprah #tv</a></p> 
    <p style=" color:#c9c8cd; font-family:Arial,sans-serif; font-size:14px; line-height:17px; margin-bottom:0; margin-top:8px; overflow:hidden; padding:8px 0 7px; text-align:center; text-overflow:ellipsis; white-space:nowrap;">Una publicación compartida de ✨��@fit_thick_Riri��✨ (@dariborun) el <time datetime="2017-09-01T13:37:05+00:00" style=" font-family:Arial,sans-serif; font-size:14px; line-height:17px;">1 de Sep de 2017 a la(s) 6:37 PDT</time></p> 
   </div> 
  </blockquote> 
  <script async defer src="//platform.instagram.com/en_US/embeds.js"></script> 
  <span class="item first"></span> 
  <span class="item second"></span> 
  <span class="item third"></span> 
 </div> 
</div> 
<p><strong>Virsaviya&nbsp;padece&nbsp;Pentalogía de Cantrell, una rara condición que provoca que su corazón permanezca por fuera del pecho.</strong> Ella se muestra en la cuenta de Instagram de su mamá como una nena feliz, aunque tenga una salud frágil.</p> 
<p><span></span></p> 
<div style="text-align:center"> 
 <div class="ck-instagram" id="instagram-73" style="display: inline-block;"> 
  <blockquote class="instagram-media" data-instgrm-captioned="" data-instgrm-version="7" style=" background:#FFF; border:0; border-radius:3px; box-shadow:0 0 1px 0 rgba(0,0,0,0.5),0 1px 10px 0 rgba(0,0,0,0.15); margin: 1px; max-width:658px; padding:0; width:99.375%; width:-webkit-calc(100% - 2px); width:calc(100% - 2px);"> 
   <div style="padding:8px;"> 
    <div style=" background:#F8F8F8; line-height:0; margin-top:40px; padding:50.0% 0; text-align:center; width:100%;"> 
     <div style=" background:url(data:image/png;base64,iVBORw0KGgoAAAANSUhEUgAAACwAAAAsCAMAAAApWqozAAAABGdBTUEAALGPC/xhBQAAAAFzUkdCAK7OHOkAAAAMUExURczMzPf399fX1+bm5mzY9AMAAADiSURBVDjLvZXbEsMgCES5/P8/t9FuRVCRmU73JWlzosgSIIZURCjo/ad+EQJJB4Hv8BFt+IDpQoCx1wjOSBFhh2XssxEIYn3ulI/6MNReE07UIWJEv8UEOWDS88LY97kqyTliJKKtuYBbruAyVh5wOHiXmpi5we58Ek028czwyuQdLKPG1Bkb4NnM+VeAnfHqn1k4+GPT6uGQcvu2h2OVuIf/gWUFyy8OWEpdyZSa3aVCqpVoVvzZZ2VTnn2wU8qzVjDDetO90GSy9mVLqtgYSy231MxrY6I2gGqjrTY0L8fxCxfCBbhWrsYYAAAAAElFTkSuQmCC); display:block; height:44px; margin:0 auto -44px; position:relative; top:-22px; width:44px;">
       &nbsp; 
     </div> 
    </div> 
    <p style=" margin:8px 0 0 0; padding:0 4px;"><a href="https://www.instagram.com/p/BYRFZ8IH0JV/" style=" color:#000; font-family:Arial,sans-serif; font-size:14px; font-style:normal; font-weight:normal; line-height:17px; text-decoration:none; word-wrap:break-word;" target="_blank">Today I just wanted to say thank you to everyone who supports us �������� who loves us and pray for us and give us any help . May Jesus give y'all 100 times more then you guys have done for us ����✝️ we are so happy to have this much love that we receive from you every day . Thank you for spreading words about our story , thank you for trying to defend us from those people who saying something bad about me and my daughter✊��thank you to those who follow us for years and to those who just joined our journey and remain faithful �� also to those new people who keep on asking me questions I wanted to explain one more time about my daughter's condition 1. The Condition's name is pentalogy of Cantrell . It's when heart is outside because the part of a rid cage and part of an abdominal muscles is missing. It's also means that heart and arteries don't work properly . Virsaviya's case has pulmonary hypertension and birth heart defects. Her intestines also outside and she don't have a diaphragm. 2. She don't have a belly button because her umbilical cord was attached to her heart when she was born and now all you can see it's a scar in the middle of her heart . So yes she is unique in this case too 3. She is 8 and a half years old 4. Her name is Virsaviya this is a biblical name . In Russian bible its sound Virsaviya in English Bathsheba, in Hebrew Beersheba or Beersheva בְּאֵר שֶׁבַע . It was a beautiful queen mother of wisest King Solomon and wife of a greatest king David #VirsaviyaWarrior #VirsaviyaArtHeart �� #ijustloveher #ijustloveyou #godbless #staystrong #stillalive #stillstrong #stillbeautiful #jesussaves #jesuslives #jesuslifestyle #jesuslovesyou #godisgood #godisgreat #godschild #inspiration #prayerworks #ibelieve</a></p> 
    <p style=" color:#c9c8cd; font-family:Arial,sans-serif; font-size:14px; line-height:17px; margin-bottom:0; margin-top:8px; overflow:hidden; padding:8px 0 7px; text-align:center; text-overflow:ellipsis; white-space:nowrap;">Una publicación compartida de ✨��@fit_thick_Riri��✨ (@dariborun) el <time datetime="2017-08-26T18:24:02+00:00" style=" font-family:Arial,sans-serif; font-size:14px; line-height:17px;">26 de Ago de 2017 a la(s) 11:24 PDT</time></p> 
   </div> 
  </blockquote> 
  <script async defer src="//platform.instagram.com/en_US/embeds.js"></script> 
  <span class="item first"></span> 
  <span class="item second"></span> 
  <span class="item third"></span> 
 </div> 
</div> 
<p>Contra todos los pronósticos que auguraban los médicos,&nbsp;<strong>Virsaviya llegó a su edad con muchos cuidados y amor.</strong></p> 
<p><strong>"Además del corazón y los intestinos, no tenía parte de los músculos abdominales, ni tenía diafragma, tampoco parte de los huesos del pecho"</strong>, le contó en su momento Dari&nbsp;a BBC Mundo.</p> 
<p><span></span></p> 
<div style="text-align:center"> 
 <div class="ck-instagram" id="instagram-36" style="display: inline-block;"> 
  <blockquote class="instagram-media" data-instgrm-captioned="" data-instgrm-version="7" style=" background:#FFF; border:0; border-radius:3px; box-shadow:0 0 1px 0 rgba(0,0,0,0.5),0 1px 10px 0 rgba(0,0,0,0.15); margin: 1px; max-width:658px; padding:0; width:99.375%; width:-webkit-calc(100% - 2px); width:calc(100% - 2px);"> 
   <div style="padding:8px;"> 
    <div style=" background:#F8F8F8; line-height:0; margin-top:40px; padding:62.4537037037037% 0; text-align:center; width:100%;"> 
     <div style=" background:url(data:image/png;base64,iVBORw0KGgoAAAANSUhEUgAAACwAAAAsCAMAAAApWqozAAAABGdBTUEAALGPC/xhBQAAAAFzUkdCAK7OHOkAAAAMUExURczMzPf399fX1+bm5mzY9AMAAADiSURBVDjLvZXbEsMgCES5/P8/t9FuRVCRmU73JWlzosgSIIZURCjo/ad+EQJJB4Hv8BFt+IDpQoCx1wjOSBFhh2XssxEIYn3ulI/6MNReE07UIWJEv8UEOWDS88LY97kqyTliJKKtuYBbruAyVh5wOHiXmpi5we58Ek028czwyuQdLKPG1Bkb4NnM+VeAnfHqn1k4+GPT6uGQcvu2h2OVuIf/gWUFyy8OWEpdyZSa3aVCqpVoVvzZZ2VTnn2wU8qzVjDDetO90GSy9mVLqtgYSy231MxrY6I2gGqjrTY0L8fxCxfCBbhWrsYYAAAAAElFTkSuQmCC); display:block; height:44px; margin:0 auto -44px; position:relative; top:-22px; width:44px;">
       &nbsp; 
     </div> 
    </div> 
    <p style=" margin:8px 0 0 0; padding:0 4px;"><a href="https://www.instagram.com/p/BYTZjqpn6u9/" style=" color:#000; font-family:Arial,sans-serif; font-size:14px; font-style:normal; font-weight:normal; line-height:17px; text-decoration:none; word-wrap:break-word;" target="_blank">This little Minnie Mouse doing great with her stretching �� my talented #VirsaviyaWarrior #VirsaviyaArtHeart �� #ifeelblessed #ijustloveher #ijustloveyou #inspiration #godschild #staystrong #stillalive #stillstrong #stillbeautiful #godisgood #godisgreat #jesussaves #jesusheals #ilovejesus</a></p> 
    <p style=" color:#c9c8cd; font-family:Arial,sans-serif; font-size:14px; line-height:17px; margin-bottom:0; margin-top:8px; overflow:hidden; padding:8px 0 7px; text-align:center; text-overflow:ellipsis; white-space:nowrap;">Una publicación compartida de ✨��@fit_thick_Riri��✨ (@dariborun) el <time datetime="2017-08-27T15:58:36+00:00" style=" font-family:Arial,sans-serif; font-size:14px; line-height:17px;">27 de Ago de 2017 a la(s) 8:58 PDT</time></p> 
   </div> 
  </blockquote> 
  <script async defer src="//platform.instagram.com/en_US/embeds.js"></script> 
  <span class="item first"></span> 
  <span class="item second"></span> 
  <span class="item third"></span> 
 </div> 
</div> 
<p>La madre y su hija son de <strong>origen ruso pero se encuentran actualmente radicadas en&nbsp;Florida, EE.UU</strong>, para poder tratar a la nena con médicos especializados.</p>

Virsaviya, la niña con el corazón hacia afuera | Foto: @dariborun

Su madre rusa es una fit girl de Instagram que conmueve en las redes con im&aacute;genes de la peque&ntilde;a de 7 a&ntilde;os que padece una rara enfermedad

pentalogía-de-cantrell

Conocé la historia de Virsaviya, la nena que vive con su corazón fuera del pecho

¡No te pierdas las últimas noticias!

pentalogía-de-cantrell

Conocé la historia de Virsaviya, la nena que vive con su corazón fuera del pecho